Uncle Sam Wants You..your medical history?
Yes.
This week, the government's hospital, the National Institutes of Health, agreed to accept me as a patient.
Here's a sample of the cover letter that my doctors at Mount Sinai Hospital put together (I've edited out any information that would embarrass me, obviously):
Whew boy! And that was only the start.
It took six months to prepare my case to be presented to be accepted and it took six hours to get accepted. I'm not sure when I go, or what this means.
I am hopeful that a bone marrow transplant is taken off the table and another medicine or therapy is given a chance. I know a cure isn't possible and that it may be very true that I am outliving the latest model every single day. I don't know how scary this can get; I only know how scary it has gotten.
I'm willing to try anything to alleviate the diabetes or constant infection. I am scared the diabetes is so out of control that I'll lose limbs or my eyes. It all feels real now.
Here's to hoping.
--
In other news, Kristie's cancer surgery went great. Oh yeah. Kristie has thyroid cancer! Like I did in 2008! What shitty luck is that.
Today she will find out what stage her cancer is and whether she requires more treatment. Please keep her in your prayers!
Times be tough but luckily we have her beautiful girls to distract us from the stress of cancer in our family again.
Today she will find out what stage her cancer is and whether she requires more treatment. Please keep her in your prayers!
Times be tough but luckily we have her beautiful girls to distract us from the stress of cancer in our family again.
We are all lucky to have my parents to propel us forward while having our back.
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I've been spending a lot of time in NY lately, walking around by myself, reminiscing about the lush years of my twenties. New York is still my favorite, forever home.
I have a part time rental on the Upper West Side. I love being back in New York. It's like I'm living again. I hate cliches but my New York love is one big Billy Joel medley of Yankee hats and Queensboro Bridge jokes and NEW YORK NEW YORK I LOVE YA NEW YORK.
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no one knows how much i dance in joy around my apartment.
it's so good.
i cry too but...man, i dance a lot. even on the saddest days. even on the Trump days. even on the worst days of the worst days, i put on Hamilton and i fucking dance.
that's what's getting me through.
also, this.
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i love all of you.
Have you ever read about:
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I'm sure it'll help her much more than the NIH will.
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